Who We Are
NYSSCAN is a 501 (c)(3) tax-exempt, nonprofit, charitable, broad-based community organization. We are dedicated to servicing children and families with sickle cell disease, thalassemia, the trait, and other chronic conditions. Established in 1978 as the Queens Sickle Cell Community Network, we subsequently became incorporated in 1997 and changed our name to Queens Sickle Cell Advocacy Network (QSCAN). Recently, we became New York State Sickle Cell Advocacy Network, Inc. (NYSSCAN).
Our purpose is to provide awareness, advocacy, and an educational system through community outreach; to identify the needs and priorities of neglected families; and to empower such families and individuals with knowledge, skills, and assistance to access services and support to meet their needs.
Mission and Vision
To collaborate with health care professionals, government agencies and programs, private institutions, and interested community groups for the management and eventual eradication of the Sickle Cell Disease.
We have a deep sense of commitment, focusing on those with Sickle Cell conditions. We provide a clear sense of direction for families and individuals, enabling them to actively participate in their communities and health care needs.
Our Goals and Objectives
Community Outreach, Education, and Awareness projects
Family or Individual Consultation & Counseling
Parent Support Group
Parent empowerment workshops/conferences
Sickle Cell Family Support Services
Hospital/Home Visits
Family Financial Program
Help Us to Sponsor a Child for Camp
NYSSCAN Warriors Group
Collaborate with researchers and participate in clinical trials
Social Media
For more information about our work and activities, check out our social media below.
Facebook: @NYSSCAN
Instagram: @nysscan
Twitter: @NYSSCAN
Linktree: @NYSSCAN
