NYSSCAN Timeline
1998
FEBRUARY 28 — 1998 Black History Month Fundraiser
2001
NOVEMBER 8 — First Luncheon Awards
2003
DECEMBER 13 — 2003 Annual Awards Luncheon
2004
OCTOBER 22 — Sickle Cell Awareness Stamp Unveiling
DECEMBER 11 — 2004 Annual Awards Luncheon
2005
DECEMBER 18 — 2005 Annual Gala Awards Banquet
2006
DECEMBER 10 — 2006 Annual Scholarships & Awards Banquet
2007
SEPTEMBER 23 — 2007 Annual Walk-A-Thon
Walk for education and awareness from Detective Keith Williams Recreational Center (Liberty Ave & 173rd Street, Jamaica) to Roy Wilkins Park, Merrick & Foch Blvd.
DECEMBER 9 — 2007 Annual Scholarships & Awards Banquet
2008
SEPTEMBER 28 — 2008 Annual Walk-A-Thon
DECEMBER 7 — 2008 Annual Scholarships & Awards Banquet
2009
DECEMBER 12 — 2009 Annual Scholarships & Awards Banquet
2010
SEPTEMBER 26 — 2010 Annual Walk-A-Thon
2011
FEBRUARY 19 — Black History Month Dinner Theater Fundraiser
“Harlem on my Mind” Produced by Breanetta Productions
Documentary presentation on sickle cell anemia
2012
MARCH 3 — Women’s Empowerment Seminar
APRIL 7 — Women’s Empowerment Seminar
MAY 19 — The Jamaica Ball
NYSSCAN held a ball in which the proceeds benefit children and families that are affected with SCD.
SEPTEMBER 16 — 2012 Annual Walk-A-Thon
DECEMBER 16 — 2012 Annual Scholarships & Awards Banquet
2013
MAY 23 — Symposium “Building Hydroxyurea Awareness in the Sickle Cell Community”
JUNE 22 — Philadelphia Bus Trip
SEPTEMBER 15 — 2013 Annual Walk-A-Thon
DECEMBER 15 — 2013 Annual Scholarships & Awards Banquet
2014
MARCH 17 — The Jamaica Ball 2014: The 3RDth Annual Party With a Purpose
MAY 31 — National Women’s Health & Wellness Awareness Day
SEPTEMBER 7 — 2014 Annual Walk-A-Thon
DECEMBER 14 — 2014 Annual Scholarships & Awards Banquet
DECEMBER 27 — 2014 Annual Holiday and Kwanzaa Celebration
2015
JANUARY 19 — 2015 Annual Martin Luther King, Jr. Day of Service
Information Session about Sickle Cell Disease
Faith Based and Community Based Panel Discussion on the Topic: “What are you doing for others?”
Panelists: Rev. Dr. J. Mastine Nisbett, Rector of St. David’s Episcopal Church; Tarika James, M.D. Medical Director at LIFQHC, NAUW LI. Branch; Gail Philpotts, Health Educator/Program Manager, Lay Minister at St. Thomas Episcopal Church, NAUW L.I. Branch; Cassandra Dobson, PhD, RN, Assistant Professor of Nursing, Lehman College
Fitness Event and Entertainment
Presentation of the MLK Drum Major Awards
Collected Donations of Gently Used Winter Coats for Children and Adults
APRIL 22 — 2015 Annual Sickle Cell Advocacy Day
APRIL 25 — Art Extravaganza
NYSSCAN gathered people for a fun and exciting art event. We painted with our graduate art therapy student specialist, Akimie Worrell. Participants received a personally autographed SCD tool kit.
MAY 4 — Sickle Cell Awareness: Community Resources and Information for Families, Friends and Individuals Living with Sickle Cell Disease or the Trait
Informational session for sickle cell disease and the trait. A wealth of resources will be available for those that are affected with sickle cell or have a loved one with the disease.
JULY 7 — Sickle Cell Awareness: Community Resources & Information @ the Pomonok Library
AUGUST 22 — 2015 Annual Back-To-School Supplies Drive
SEPTEMBER 6 — 2015 Annual Walk-A-Thon
DECEMBER 4 — Free Education and Support Workshop on Hydroxyurea
DECEMBER 12 — 2015 Annual Scholarships & Awards Banquet
DECEMBER 26 — 2015 Annual Kwanzaa Celebration and Toy Drive
NYSSCAN, in collaboration with the Jam Master Jay Foundation for Youth, held a celebration for the 7 principles of Kwanzaa in which the participants enjoyed fun and games with children.
This event included Essay readings, book reading, Music, Poetry, Dancing, Face painting, Giveaways, Prizes
2016
JANUARY 17 — 2016 Annual Martin Luther King, Jr. Day of Service
NYSSCAN presented an information session about sickle cell disease at the Linden school. The service program also included a panel discussion on the topic: “What are you doing for others?”
2017 Annual Scholarships & Awards Banquet
APRIL 15-16 — 2016 Annual Sickle Cell Advocacy Day
NYSSCAN and other chapters met with members of Congress to lobby for funding for SCD.
APRIL 20 — Get to Know Sickle Cell Disease: Talk with the Experts
NYSSCAN in collaboration with York College Division of Student Development launched this annual event.
APRIL 26 — NYSSCAN Art Extravaganza
NYSSCAN provided an art experience workshop for Sickle Cell adolescents and young adults age of 16-25 with art therapy student specialist, Akimie Worrell.
JUNE 19 — 2016 World Sickle Cell Awareness Day
NYSSCAN hosted its annual World Sickle Cell Awareness Day Festival. Different healthcare providers were available for free screenings. Guest speakers from Lehman College, Long Island University, and Dr. Guobadia all spoke about sickle cell disease. Food from different cultures was served. We were entertained by a mime praise dance performance as well as face painting for the kids and a DJ provided world music.
JULY 27 — Queens Hospital Center
NYSSCAN hosted their annual bake sale. We provided baked goods, water, and juice. We also provided our Walk-A-Thon flyer and NYSSCAN informational pamphlets to the customers; picking up several that had a close family member or friend that had the trait or the disease itself.
SEPTEMBER 10 — 2016 Annual Walk-A-Thon
In partnership with York College
Joined by a host of public and private supporters, NYSSCAN drew media attention (channel 4 and NY1) to our annual Walk-A-Thon for Sickle Cell Disease awareness that began at York College in Jamaica, Queens and ended in Roy Wilkins Park on Merrick Boulevard.
DECEMBER 11 — 2016 Annual Scholarships & Awards Banquet
DECEMBER 28 — 2016 Annual Kwanza and Holiday Celebration
**In 2016, NYSSCAN participated in over 30 community education and outreach activities in the Tristate and Metropolitan area**
2017
JANUARY 16 — 2017 Annual Martin Luther King, Jr. Day of Service
The Get Connected Team from NYSSCAN also presented at this event to enroll people in GET Connected, the First National Sickle Cell Patient Powered Registry.
NYSSCAN presented an information session, panel discussion with community leaders about sickle cell. Individuals came together from all over the community and had an amazing time. Over 200 people attended and learned more about sickle cell disease.
FEBRUARY — Awareness on the Chronic Disease of Sickle Cell Anemia, Lupus, and Osteoarthritis
NYSSCAN joined with the Health Ministry for a summit to offer health screenings, flu shots, entertainment, and informational sessions about different diseases.
FEBRUARY 18 — 2017 Annual Sickle Cell Advocacy Day
NYSSCAN advocated for those affected by SCD and for the NYS Sickle Cell Treatment Act of 2015 - 2016. There was a free bus trip to Albany for those who wanted to join us in our advocacy. We met with NY State Senators and Assembly members, and participated in discussions. This took place at the Empire State Plaza Convention Center in Albany, New York.
MARCH 4 — Queens Library’s “Women’s History Month Program” starring Ms. Gloria Rochester
The Founder of NYSSCAN, Ms. Gloria Rochester, was honored by QPL for “Women’s History Month Program.” She shared her story of years of advocacy for the sickle cell community. Over 120 people attended to appreciate and honor her hard work for the community.
MAY 27 — The National Museum of African American History & Culture Trip
NYSSCAN provided two loaded buses of family to The National Museum of African American History & Culture in Washington D.C. The buses picked up family and individuals from our center, the New York State Sickle Cell Advocacy Network, INC.
NYSSCAN provided an unforgettable and wonderful event at the museum for the community. People gathered from Brooklyn and Queens to experience workshops at the museum. Individuals had a blast and said that they didn’t want the day to be over.
JUNE 16 — Sickle Cell Disease Symposium
NYSSCAN in collaboration with the Nassau County Commission on Human Rights presented a Sickle Cell Disease Symposium which took place at the Nassau County Executive Building Ceremonial Chambers.
NYSSCAN presented Keynote Speaker Dr. James T. D’Olimpio, Medical Oncology, Hematology, Hospice/Palliative Medicine, Internal Medicine. The presentation included a discussion about the characteristics of each disease as well as explanation about how they are inherited from parent to child. Over 50 supported the work that is being done in sickle cell and listened to the presentation.
AUGUST 19 — Rockaway Caribbean Carnival featuring NYSSCAN
NYSSCAN participated in the Rockaway Caribbean Carnival of 2017. The event provided a fun networking event for the community. The Mighty Sparrow, Calypso King of the World had a concert at the Caribbean Carnival. The parade started on Mott Avenue and Beach 20th Street and continued to Seagirt Blvd ending at the Beach 17th amphitheater in the park. There were youth performances, entertainment, and culturally related activities. Residents had the opportunity to participate in the festivities.
SEPTEMBER 9 — 2017 Annual Walk-A-Thon
NYSSCAN sponsored the National Sickle Cell Awareness Month. As part of its observances, the families and individuals of the New York State Sickle Cell Advocacy Network, Inc. are presenting the Annual Walk-A-Thon to bring awareness, education, and research about Sickle Cell Disease to the community at large.
Ms. Gloria Rochester and other supporters of sickle cell awareness (over 200 people) walked for sickle cell awareness, education, and research.
OCTOBER 14 — Sickle Cell Disease Symposium
NYSSCAN and other chapters of the Nassau County Commission on Human Rights came together and presented a speaker to talk more about sickle cell disease.
Featuring Keynote Speaker: Dr. Herold Duroseau, MD
Pediatrics- Hematology/Oncology
Together they launched a free symposium for families and individuals with SCD.
NOVEMBER 2 & 3 — Hunter A. Haymore Speech Collaboration
NYSSCAN collaborated with Hunter A. Haymore at Morehouse College, Clark Atlanta University and Spelman College. Hunter shared her harrowing story and how she was ultimately cured of SCD.
Individuals and families from all over the country have joined in and enjoyed the speech.
NOVEMBER 22 — 2017 Annual Thanksgiving Drive
DECEMBER 17 — 2017 Annual Scholarships & Awards Banquet
DECEMBER 30 — 2017 Annual Kwanzaa Celebration
2018
JANUARY 15 — 2018 Annual Martin Luther King, Jr. Day of Service
FEBRUARY 23 — Insomnia with Sickle Cell Disease Presentation
MARCH 6 — Senior Center Presentation on Medication Misuse and Abuse
MARCH 14 — Lobby Day about Sickle Cell Treatment Bill Act of 2018 and 2019
MARCH 28 — Hydroxyurea Educational Presentation
MARCH 29 — Opioid Abuse Presentation
MAY 8 & 17 — Long Term Care Management of Sickle Cell Disease
MAY 31 — Women’s Health & Wellness Awareness Day
JUNE 19 — Sickle Cell Disease Awareness Presentation
AUGUST 10 — Cultural Barriers of Sickle Cell
AUGUST 18 — #PINKSEXY Fundraiser for Sickle Cell
SEPTEMBER 8 — 2018 Annual Walk-A-Thon
SEPTEMBER 20 — Management of Sickle Cell Disease: Traditional Herbal Medicine
SEPTEMBER 20 — Presentations by Intern From Touro College of Pharmacy—Renee Powers
Topics: “Sickle Cell Disease Overview and Why NY State Funding is Needed” and “An Information Session on the Opioid Crisis and Related Issues Faced by Sickle Cell Disease Patients”
NOVEMBER 21 — 2018 Annual Thanksgiving Drive
DECEMBER 16 — 2018 Annual Scholarships & Awards Banquet
2019
MAY 25 — The Jamaica Ball 2019: The 8th Annual Party With a Purpose
Participants had 90% of the ticket profits go directly toward a non-profit of their choosing. Through this event, NYSSCAN fundraised for scholarship awards given to sickle cell individuals who, in spite of the challenges they face, are determined to achieve their academic goals in college.
NYSSCAN partnered with NYC Health + Hospitals/Queens to host an Information and Awareness Fair and our official World Sickle Cell Awareness Day Program. We featured a number of vendors and health care experts who provided free educational material on sickle cell disease. This event raised awareness about the health and well-being of the sickle cell community with the help of stories, discussions, and more.
SEPTEMBER 7 — 2019 Annual Walk-A-Thon
DECEMBER 15 — 2019 Annual Scholarships & Awards Banquet
2020
JUNE 19 — 2020 World Sickle Cell Awareness Day: Shine the Light on Sickle Cell
OCTOBER 13 — SCD Community Health Educational Training Series: Session 3
NOVEMBER 21 — 2020 Annual Thanksgiving Drive
2021
JUNE 19 — 2021 World Sickle Cell Awareness Day
SEPTEMBER 25 — 2021 Annual Walk-A-Thon
DECEMBER 19 — 2021 Annual Scholarships & Awards Banquet
2022
JULY 9 - 2022 Hibiscus Study Webinar
SEPTEMBER 24 - 2022 Annual Walk-A-Thon
DECEMBER 18 - 2022 Annual Scholarships & Awards Banquet
Upcoming events…
SEPTEMBER 24 - 2022 Annual Walk-A-Thon
DECEMBER 18 - 2022 Annual Scholarships & Awards Banquet